Planet Aphasia 

Reflections about living with, caring for and being cared for by a home, a garden and a partner with primary progressive aphasia 

http://doonandiddlysquat.blogspot.co.uk/

Imagine a Life with NO Words .. Give me Voice .. I want to talk, I want to shout ..

https://www.youtube.com/watch?feature=player_embedded&v=8d3vrkKk5m4

HI

I HAVE JUST BEEN TOLD THAT MY 4 YEAR OLD SON HAS BEEN DIASNOSED WITH APHASIA

COULD YOU PLEASE IF POSSIBLE VERIFY THAT SOMEBODY SO YOUNG COULD HAVE THIS PRIBLEM.

HE IS LIVING IN THAILAND NOT THE UK

THIS WHY I AM A LITTLE WEORRIED & WOULD LIKE A SECOND OPINION 

MANY THANKS, Norman Vernon

Hello there Jennie and Wilfred

I just felt I had to say thank you for all your efforts on behalf on the Monday group.

Stan has not been really well for some time now but he is always ready to come to the Monday group.

It has given him confidence in doing the things like the Gardening mornings. 

He just hasn't been interested in doing anything like it at home, but today after dinner he got up and put his shoes on and went out into the garden. I had bought a load of plants hoping that he might plant the garden out side the kitchen patio window.  Someone had dug it over for me. I put him an apron on and he was out there in the sunshine for over an hour.  I'm sure he enjoyed it he kept shooing me away he wanted to doit his way- so I let him.

Thank you for your encouragement  

Doreen Stan

I am very interested in Melodic Intonation Therapy as my son Larry had a stroke at the age of 40, 3 years ago & he has aphasia. 

He is very frustrated at not being able to have a conversation with people & especially with his 2 little boys aged 6 & 4. 

I cannot seem to find anyone in the UK who uses MIT therapy & the usual therapy does'nt seem to be making much progress any more. 

Larry understands absolutely everything but just cannot says what he wants to.

Do you know if there is anyone who can help us or even a MIT kit or program that we could purchase.

Thank you, Kind regards, Stella Boylan

Hi, 

I am hoping you could help me understand something that happens with my son periodically. 

He is sixteen and has a diagnosis of Asperger's, which only came about 18 months ago as he was experiencing anxiety at school. 

He is a high achiever and gets good grades. 

When he is under stress he cannot speak or write at all, he cannot get words out at all, not even garbled or croaking. 

He cannot write either, he grips the pencil and presses it on the paper but all he manages to do is break the lead. 

This has caused some problems in exams and I am trying to get the school to allow him to use a computer as this would remove some of the stress he encounters in exam conditions but they are reluctant. as they feel it would give him an 'unfair advantage'. 

Does this sound like Aphasia, would typing help 'bypass' the speech blockage?

Many thanks for you help 
MD

A young man who has Aphasia is very soon going to go off travelling on his own to Canada. 

I was wondering if a card with an explanation of his condition might be helpful to show to people if/when he finds his communication disorder a real barrier, and I was wondering if your organisation, with Logo on, might offer such a card? 

If it doesn't might you suggest the appropriate wording for such a card that i could make for him?


Vivienne